About Me

My photo

The Worldwide Lyme Disease protest will take place in 21 different countries on 16th and 18th May 2014. Australia is part of this worldwide protest. If you would like to be involved please add your name to the face-book site: or for Sydney: https://www.facebook.com/groups/SydneyWWLP/ and https://www.facebook.com/groups/GreaterWesternSydneyLymeSupportGroup/events/ and for the rest of Australia visit  https://www.facebook.com/WorldwideLymeProtestAustralia 

Friday, 15 March 2013

Virginia governor signs Lyme bill


The groundbreaking law requires patients to be notified that a negative Lyme test doesn't necessarily mean they don't have Lyme disease.
Bob McDonnellVirginia Governor Bob McDonnell today signed into a law the Lyme Disease Testing Information Disclosure Act. Under the new legislation, patients being tested for Lyme disease must be officially informed that a negative test result does not mean they don’t have Lyme disease.
House Bill 1933, sponsored by Delegate Barbara Comstock and others, requires the following notification to be given to anyone being tested for Lyme disease.
YOUR PHYSICIAN HAS ORDERED A LABORATORY TEST FOR THE PRESENCE OF LYME DISEASE FOR YOU. 

CURRENT LABORATORY TESTING FOR LYME DISEASE CAN BE PROBLEMATIC AND STANDARD LAB TESTS OFTEN RESULT IN FALSE NEGATIVE AND FALSE POSITIVE RESULTS, AND IF DONE TOO EARLY, YOU MANY NOT HAVE PRODUCED ENOUGH ANTIBODIES TO BE CONSIDERED POSITIVE BECAUSE YOUR IMMUNE RESPONSE REQUIRES TIME TO DEVELOP ANTIBODIES. 

IF YOU ARE TESTED FOR LYME DISEASE, AND THE RESULTS ARE NEGATIVE, THIS DOES NOT NECESSARILY MEAN YOU DO NOT HAVE LYME DISEASE. IF YOU CONTINUE TO EXPERIENCE UNEXPLAINED SYMPTOMS, YOU SHOULD BE RETESTED PERIODICALLY AND YOU SHOULD CONTACT YOUR PHYSICIAN IF YOU HAVE ANY QUESTIONS OR CONCERNS.

Comstock worked with members of the National Capital Lyme and Tick-Borne Disease Association to garner support for the measure. On one occasion, more than 100 supporters—many of them Lyme patients who had initially tested negative for disease—filled a hearing room in the House of Delegates. On the day of the final House vote, several legislators themselves spoke movingly of a personal connection to Lyme disease. Especially poignant were remarks from Delegate James Edmunds, who said that he believes his father died from undiagnosed Lyme disease, after a negative Lyme test.
Comstock said inaccurate test results often lead to Lyme patients going undiagnosed and untreated for months or even years. “I’m pleased that we were able to pass this bill which focuses on getting information about testing problems directly to patients so they can seek additional testing, if necessary, as well as appropriate treatment.”
The Medical Society of Virginia, which opposed the bill, had been lobbying for Governor McDonnell to veto the measure, saying that it interfered with the physician-patient relationship.
Related posts:
  1. NEWS: Lyme disease bill advances in Virginia Legislature
  2. NEWS: Virginia passes bill requiring doctors to disclose that Lyme tests can be faulty
  3. NEWS: Video of floor vote on Virginia Lyme bill
  4. NEWS: Massachusetts governor signs Lyme doctor protection law
  5. NEWS: New Hampshire bill to protect Lyme docs goes to governor

Enhanced by Zemanta

Monday, 28 January 2013

Worldwide Lyme Disease Awareness Protest



Worldwide Lyme Disease Awareness Protest

Over twenty countries and several states all to protest on

May 10th & 11th, 2013


* Lyme patients from all over the world feel they are being ignored and even being denied treatment for tick borne illnesses such as Lyme Disease, Babesia, Erlichisois, Ricksettia and Bartonella.

* Demands are being made for accurate testing, proper treatments, and admittance that Chronic Lyme Disease is real, serious and potentially fatal.

* Patients want to know why the IDSA is being used by the CDC for their guidelines in the treatment of Lyme Disease even after investigation found them biased and the guidelines flawed.

* Lyme patients are asking that the healthcare community need to be better educated in order to effectively diagnose and treat patients with Chronic Lyme Disease.

* Lyme patients are stating that independent funding for medical research into Lyme Disease testing and treatment are needed.

* Several states and over twenty countries will be protesting including: Germany, Austria, Canada, UK, Switzerland, France, US, Poland, Denmark, Norway, Australia, Iceland, Finland, The Netherlands, Ireland, Sweden, South Africa, Spain, Romania and the Faroe Islands.

* There will be protests, rallies, letter writing campaigns and live petitions right across Australia.

Enhanced by Zemanta

Sunday, 27 January 2013

1st International Tick Borne Diseases Conference - Addressing the Complexities


 (You will be redirected to our secure payment website) 


This international conference is aimed at bringing together clinicians, allied health professionals, researchers and academics working in Tick Borne Diseases (TBD).  It will be held on 15-17 March 2013 at the Kerry Packer Education Centre, Royal Prince Alfred Hospital, Camperdown, Sydney, NSW, Australia.

The idea of a TBD Conference has emerged from a general need for all interested bodies to come together, to learn from each other, to form collaborations and friendships that benefit the diagnosis and treatment of TBDs. The conference will bring together both international and Australian allied health professionals and researchers working towards unravelling the complexities of TBDs, to discuss issues, share both clinical and research results that will ultimately help clinicians to form an appropriate diagnosis and treatment regime to benefit patients and also to inform public health policy to reduce the incidence of stealth tick borne infections.
 
Abstract Deadline: Friday 1st February, Click for more information about submitting an abstract

Speakers include (Click on each Speaker's Name for individual biographies): 

On Friday 15 March - Welcome Reception starts from 6pm in Wilarra Room on Level 2 at The Grace Hotel, Sydney
On Saturday 16 March - Conference Dinner from 7pm in Pinaroo Room at The Grace Hotel, Sydney

On Sunday 17 March two workshops will be held, the first workshop by Dr Kenneth Liegner and the other by Dr Lee Cowden where case studies will be discussed in detail. Interested clinicians who have cases that are particularly complex and would be considered appropriate for discussion in the workshops, please email details of the cases so they can be reviewed for inclusion in the workshop info@karlmcmanusfoundation.org.au

(Adobe PDF Format)

The 1st International Tick Borne Diseases Conference will be recorded. Speakers who have any problems please contact the foundation, info@karlmcmanusfoundation.org.au.  DVDs will be available for sale. The proceeds of the DVD sales will go to fund Tick Borne Diseases Research at the University of Sydney.

Conference Pricing

Early Bird Full Registration (By March 1) - AUD 695
Full Registration AUD 845
FULLTIME STUDENT* Early Bird Full Registration (By March 1) - AUD 545
FULLTIME STUDENT* Full Registration AUD 645

Additional Dinner Ticket AUD 145 per person 
Additional Welcome Reception AUD 50 per person

* STUDENTS PLEASE NOTE: To qualify for Student Prices you MUST be registered as a Fulltime Student. Please provide your student details (Student ID, Institution) to 
info@karlmcmanusfoundation.org.au PRIOR to registering. 

Full Registraion Includes access to the entire program, including Friday Welcome Reception, Saturday Conference and Dinner, and Sunday Workshop

If you would like more information on Kerry Packer Education Centre (KPEC) please click here. Transport options to KPEC can be viewed here

Conference Accommodation details for The Grace Hotel, cnr York and King Streets, Sydney can be found:  accomodation details
On behalf of the Karl McManus Foundation and the organising committee we look forward to welcoming you to the 1st International Tick Borne Diseases Conference.
 
 (You will be redirected to our secure payment website)

PREFER TO PAY BY CHEQUE/MONEY ORDER? PLEASE DOWNLOAD AND PRINT OUR
OFFLINE REGISTRATION FORM (Adobe PDF Format)

Conference Terms and Conditions

  • Payment website security: All ticket transactions are processed via a secure third party website hosted and processed by EventArc. When purchasing tickets from Karl McManus Foundation/EventArc your financial details are passed through a secure server using the latest 128-bit SSL (secure sockets layer) encryption technology. 128-bit SSL encryption is approximated to take at least one trillion years to break, and is the industry standard. If you have any questions regarding our security policy, please contact us on info@karlmcmanusfoundation.org.au
  • Refund Policy: All ticket sales are final and non refundable. In the unlikely event of a cancellation or reschedule of the event we will contact you with more information. If you have any questions regarding our refund policy, please contact us on info@karlmcmanusfoundation.org.au 


THE AIMS OF THE KARL MCMANUS
FOUNDATION INCLUDE

  1. To facilitate research and raise awareness of Lyme disease (borreliosis and co-infections) and other tick-borne diseases in Australia.
  2. Advocate for better testing and treatment of borreliosis and co-infections.
  3. Educate doctors and other health professionals about Lyme disease (borreliosis) and co-infections in Australia.
  4. Use the media to alert the public about Lyme disease (Borreliosis) and co-infections in Australia.
  5. Publicise that there is a potential to misdiagnose Lyme (Borreliosis) as many other serious chronic diseases like Parkinson’s disease, motor neurone disease (MND, ALS), multiple sclerosis (MS), Alzheimer’s disease, fibromyalgia and ME/chronic fatigue syndrome and autism.

Enhanced by Zemanta